Learning Ally recently published a terrific list of ten things parents of children with dyslexia wish others knew, which inspired me to come up with a list of my own: “10 Dyslexia Facts Literacy Therapists Wish Everyone Knew.”
1. People with dyslexia are born with dyslexia.
2. The symptoms aren’t always what you think they are.
“I never saw her reverse b and d!”
“He loves listening to books and would sit and read along when he was young!”
Sometimes parents and teachers don’t recognize dyslexia because it doesn’t look like they expect it to. While some people with dyslexia really struggle with reversals of letters and numbers, not all do. Other signs your child might have dyslexia include:
3. Even if a teacher says your child is reading on grade level, she still may have dyslexia.
Teachers use all kinds of assessments to determine a child’s grade level. Some of these tests have a stronger research base than others, and some miss identifying symptoms of dyslexia altogether because of the way they define “on grade level.”
Teaching kids with dyslexia to read sounds like it should be your school’s job. But time and time again we hear about the struggles parents have getting appropriate literacy services from school. While parents should advocate for improvements in the system, the wait time for that type of improvement can be precious years of your child’s life.
5. The school’s testing for learning disability is not the same as a dyslexia evaluation.
Even if you beat the odds and are able to get an evaluation from the school, it still may not help!
Schools typically administer two types of testing: (1) a broad achievement battery and (2) an intellectual battery. The problem is children with dyslexia who are also very bright may score in the “average” range on both of these assessments, so their dyslexia goes undetected.
What we are looking for with dyslexia, especially in lower elementary grades, is not just whether a child is able to read words on the page, but what strategies he or she is using. Kids who memorize words may appear to be average readers, but when the demands of reading increase (typically in upper elementary or middle school) the holes in their foundations cause them serious problems. Those kids need help too, even though they may not qualify for school services according to their assessment.
6. Accommodations are not the same thing as instruction.
Once you have a dyslexia diagnosis, your child may be eligible for a 504 plan. This plan is designed to improve your child’s access to the general education curriculum and may include accommodations such as extended time on tests or having test items read aloud. While such accommodations might improve your child’s grades, they are not a replacement for intervention! Accommodations will not teach your child to read or spell.
Have you ever read about how much easier it is to learn a second language when you are young? The same is true for reading!
If your school is resistant to providing the services your child needs, don’t wait for them to get on board. You may have to pay for the services now, but the cost of waiting may be far higher.
8. The program is less important than the person delivering it.
Parents often ask, “What is a good curriculum for children with dyslexia?”—either so they can (a) purchase it and teach it themselves or (b) demand that their school purchase it.
Using research-based instruction materials is vital, but it is not enough. Each dyslexic has a different combination of literacy and emotional issues that need individual, expert attention. That means that even if a curriculum is delivered exactly as prescribed, this one-size-fits-all approach cannot meet the needs of all children.
9. The way a program is delivered is as important as the program itself.
Even if your school has purchased a high quality, Orton-Gillingham based, structured literacy program and trained teachers to deliver it, your child may not get his or her needs met. The following aspects of a treatment program are particularly critical and underserved:
Every time I deliver a diagnosis, I want to accompany it with a pep talk and a hug! By the time most kids are identified, both they and their parents have been through the ringer. I wish I could say it’s all smooth sailing from there, but for too many it’s just the start of the battle. Still, people with dyslexia are succeeding all the time in just about any and every profession you can think of. They are doctors, lawyers, politicians, artists, entrepreneurs, innovators. All of the brilliance and potential you see in your child is exactly what our world needs, and there is no good reason to allow dyslexia to take that away. Your child has talents and strengths that run deeper than dyslexia, and there is light at the end of the tunnel. You can make it!
If you’d like more information about child’s reading difficulties, I’d recommend taking this free online dyslexia test our team built to help parents quickly identify if their child may be at risk for dyslexia.
Images courtesy of Freedigitalphotos.net: Clare Bloomfield, Criminalatt, Stoonn, Stockimages
Since 2003, Tori has been a committed special educator, working as an elementary special education teacher. Her drive to improve outcomes for her students with dyslexia led her to the Neuhaus Education Center, where she was trained in Orton-Gillingham the summer after her first year of teaching. "I was so frustrated as a first year teacher, not knowing how to meet my students' needs. I spent the entire summer learning about dyslexia and was thrilled by my students' progress the next year!" Since then, she has used the method in English and Spanish with students in three states. In 2009, Tori completed her M.Ed. in Special Education at the Peabody College of Vanderbilt University, where she focused on educational strategies for students with learning disabilities. Tori joined the Lexercise team full-time in early 2014 after seeing students online for over a year. When she is not working, Tori loves to read, cook, garden, and spend as much time outdoors as possible.